Thursday, September 29, 2011

Things I've Learned On Our Journey

Each day on this journey has enlightened me and taught me a lesson that has changed my outlook on our struggle and my life. These are some of the things I have been able to recall in this moment:

1.) Infertility is more prevalent than I had known.
2.) Different doctors/specialists have different ideas on fertility and the treatments they practice on their patients. Good luck choosing the one that will happen to work for you.
3.) Doctors/specialists have more of a limited knowledge base and fewer treatment options for PCOS than I had hoped for.
4.) PCOS (poly-cystic ovarian syndrome) affects more women than I ever imagined.
5.) PCOS is one of the leading causes of infertility.
6.) The majority of people have no idea what PCOS is and how it effects those that have it.
7.) People inadvertently say things about infertility that hurt more than help.
8.) It's more than ever increasingly difficult to understand the following:
a.) women that don't want a baby get pregnant "accidently"
b.) women who sell their bodies for drugs, money, etc. get pregnant
c.) women who are in prison and give birth in prison
d.) girls that get pregnant at the ages of 10, 11, 12, 13, 14, etc.
(I have often contemplated becoming a crack addict that walks the streets in order to conceive - that seems to be the secret! j/k)
9.) I've learned hope is enduring, unwavering, and persevering.
10.) It is possible to begin crying at the sight of a baby or small child - not only because they are so cute or adorable, but because the very sight causes your heart to ache for what it desires and for what it may never have.
11.) Our plans and timing are not that of God's and His are supreme. Case and point, I always said I would at least have my first child while in my twenties. Too late for that now . . .
12.) More people love, pray, and hope with Chad and me than I had known before this journey began.
13.) I have been blessed with more than most people on this planet could ever dream. Of course, I have always known this, but this journey has amplified this truth and these blessings will never again go unnoticed, unappreciated, or un-treasured.
14.) The sheer, gloriously miraculous blessing it is for us, mere mortals, to conceive, carry a growing, developing child in the womb, give birth to that child, and then have the blessing of watching that child grow and learn about our world.
15.) There REALLY are one million and one things that have to happen PERFECTLY for a baby to be born. It's a wonder that any of us are here! Truly! Proof that each of us have a special purpose.
16.) There are no guarantees or certainties in life - ever!
17.) I want a baby more than I really ever realized.
18.) My husband wants a baby more than I really ever realized.
19.) I will be alright and the world will continue to turn if I shall never carry or deliver our baby.
20.) Each day that passes is one closer to the day we shall meet our baby. And, that is something to hope for and be thankful for!

Monday, September 26, 2011

September


You are probably wondering why I haven't been posting a whole lot lately about infertility . . . well, other than the fact that this past week was gloriously stuffed full of parties, birthdays, work, and a spontaneous visit from a world-traveling friend, I have attempted to push thoughts and worries about our infertility struggles far from my mind - need I say, "attempted."
  After reading the words, 'Not Pregnant,' on a pee stick in the last lingering days of August, I lost all control. I sobbed and bawled uncontrollably for most of the day and it felt good to rid my body of all the churning emotion that I could no longer rein in. I cried in the shower and while I watched the morning news. I cried and cared not for the snot streaming onto my pillow while in a fetal position on my side of the bed until Bella, our calico cat, jumped up and joined me . . . purring me to get happy. I cried when I told my mom I had yet another negative test. I cried when I told Chad I couldn't do this anymore - subjecting us to disappointment and heartbreak month after month. He said he wasn't ready to give up yet. And, deep in my heart I also knew I wasn't quite ready to give up. It was just so easy to imagine us without this burden. 
  It is more than difficult to put into words the feelings and emotions that surge through my body each month after a negative test. Some have asked why I cry like I do over a negative pregnancy test. Not only is it disappointing, sad, and painful for my own reasons: the missed opportunity to conceive, the absence of pregnancy, the harsh reality that, again, our efforts did not succeed. These, and many other feelings I cannot pin down at the moment are matched, if not exceeded, by the very same feelings that Chad is experiencing. And, the fact that neither one of us can do any better or change the circumstance - the fact that we are helpless in the routine of our struggle is the most heartbreaking part. We are doing anything, everything, and even more than what is expected of us to conceive.
  That evening, after I could no longer cry, we went to the dollar theatre and enjoyed a funny, often raunchy, movie that relieved our sadness for the last couple hours of the day. I awoke the next morning with a renewed hope. Then, I waited and, yes, hoped that the test was wrong and my period wouldn't come. (That darn hope just wouldn't go away!) My cycle arrived a couple days later. And, then, I waited yet again to give myself a few days to re-evaluate where we were in our progress, where I really was in my outlook on our journey (aside from my passionate emotions that were begging me to surrender a few days before), and where Chad was and what he needed and felt about where we were on this journey. After talking with Chad, thinking about it, pondering all these things in quiet moments each day, I called the doctor's office on the fifth day of my cycle - the day every month I usually call to request more medication and start the process all over again. But, this time, I informed the nurse that I would be taking the month of September off from any treatments. I tried my very best to not break down when I told her I was so sick and tired of the disappointment, but I'm sure my quivering voice gave me away. She told me she was sorry about the negative test and that she understood why I wanted to take some time off . . . she agreed that it was probably a good idea after she assured me our chances of conceiving wouldn't be effected by taking a month off. (On a side note: The support and encouragement I have received from the doctors, nurses, and medical staff at the clinic has been lavishly and lovingly poured over Chad and me - for that I will be always grateful.)
  After I hung up the phone, I experienced a few moments of doubting my decision - feeling like I was giving up and allowing the pain to claim a victory over our hopes and dreams. But, another voice, deeper still in my heart granted peace with my decision and I made a conscious decision to put the disappointment, the defeat, the struggle, the pain - I put it all away and looked forward to my favorite month of the year. And, September, has once again met my expectations for fun, celebration, cooler weather, and a wonderful introduction to the holiday season. I have enjoyed my vacation from the needles, the hot flashes the medicine brings, the midnight sweats the medicine causes, the daily changes in my body that make me wonder if there is something special going on inside my body.
  So, in a few days, I will call the clinic and request more medication so we can start all over again because that thing with feathers remains perched in my soul.
  Coming up soon, I will elaborate on the treatments we have been trying in the last couple years and what our options are after this month is up.

Wednesday, September 21, 2011

Birthday Weekend Photo Montage

So, I admit that taking pictures is not on my list of talents and abilities. Please bear with me . . . I am trying and have a desire to improve my photography skills. I am confident, the quality and creative perspective in the pictures I take will improve - hopefully.
Let's begin - this is my birthday weekend:

On Saturday, I was expecting cool, breezy weather, but it turned out to be quite warm and humid. I invited my parents to join Chad and me since they hadn't been to the zoo in over a decade! We had a good time and enjoyed seeing the animals. I took pictures of my favorite animals we saw that day: The Grizzly bear, the Great Horned Owl, the Mountain Lion, a Monarch butterfly, and last, but certainly not least - the baby elephant, Malee! (I always enjoy seeing the chimps, but failed to get a good picture of them.)




On Sunday, we celebrated all the September birthdays in Chad's family - five total! Chad's aunt baked a yummy cake and his uncle had an OU Sooner cake. Then, it was off to my parent's for our weekly dinner. My brothers joined us for dinner, cake, and playing with their new puppy, Rex. He is a Westie. My brothers and I grew up with a Westie, named Heidi, so we were all real excited to welcome another Westie to our family. He has proven to be a fun addition with his adorable, fluffy 3 lb self paired with his spunky attitude!




On Monday, my friend, Annaleise, her sweet little girl, Isabella, and I went to lunch at Nikelette's. It was yummy and Isabella kept us smiling with her jabbering and curiosity. That evening, Chad and I drove down to Norman and decided to walk around OU's campus before we ate dinner. We visited the Spoonholder on the North oval where he proposed six years ago. We snuck around in "the stacks" in the library where we used to study. We visited the Gaylord College of Journalism, from which I graduated. We walked and talked and felt like the old people on campus . . . we missed those days of going to class, staying up all night, walking around campus everyday. I missed the friends I made during college and savored the many memories I made on almost every inch of that campus. I couldn't look anywhere without seeing myself seven to eight years ago with friends stopping to chat between classes, alone under a tree writing, weaving my purple bike through the crowds of students walking to class. It was a great chapter in my life and I learned a lot about myself - how to be independent, what kind of person I wanted to be, how to open up to others, how to accept others and their differences. I could talk all day about my college experience and the impact it had on my life, but maybe I'll save that story for a novel. Who knows?!
After our stroll, we walked into the delicious aromas at Victoria's Pasta Shop on campus corner. We sat at a small table in a corner of the restaurant and ordered their mushroom caps, which were beyond yummy! Then, my old faithful, favorite - whole wheat pasta with marinara sauce. I think Chad got the lasagna rolls, which he said were good. We finished it off with a piece of caramel fudge cheesecake, which was amazing! My birthday couldn't have finished any better! My favorite man with me at my favorite restaurant!
Please forgive the formatting of the photos. They are a bit out of order and I couldn't figure out how to move them around once they were uploaded . . . I had a few technical difficulties! My picture blogging abilities can only improve, right? The next post with pictures should be better. :)

Saturday, September 17, 2011

The Big, Fat 30!

Here I am beginning the weekend that is my 30th birthday weekend (my birthday is Monday)! It's really strange realizing that I will be thirty years old in a couple days. I remember high school like it was yesterday. I feel like college happened last week! I remember seeing my baby brother for the first time at the hospital the day he was born 25 years ago. I remember when my mom was thirty - I was nine! I have been blessed with so many wonderful experiences in my life that I will always cherish. Life is good and I have faith it will continue to get even better!
Chad went and got donuts this morning and that's always a good start to a great weekend. We plan to enjoy this refreshing fall weather by taking a trip to the zoo this afternoon and walking our big dog this evening. I plan on seeing family, eating lots of cake and enjoying this few days of being off work from my part time job that feels like a full time job! But, perhaps my favorite day will be Monday, my birthday, when I'll have lunch with a friend and then go to Norman that evening to eat at my most favorite restaurant, Victoria's Pasta Shop. After a delicious meal, Chad and I will walk around OU's campus in the moonlight and reminisce and talk about the old days when we were younger - we may even visit the site where Chad asked me to marry him on September 16, 2005.
Please stay tuned and visit again as I will have a birthday post early next week with lots of pictures to document this weekend. I will also resume posting on our journey to meeting our baby.
I wish you all a splendid weekend!

Tuesday, September 13, 2011

The Diagnosis

It was a sunny winter morning in December 2001. I was in my sophomore year of college and living with my parents (which I am grateful I was at my parents when this happened) and preparing to move into my apartment in Norman in January.
That morning, my parents had left the house to finish up some Christmas shopping and I was left warm in my bed with my 15 year old brother in the next room. Upon waking, I went into the kitchen to snag a doughnut for breakfast and on my way back to my room to shower, a sudden, stabbing pain seemed to pierce the right side of my body. In response to the pain, my body immediately crumpled and I walked like a hunchback back to my bed. The pain, then, seemed to spread throughout the front and back side of my abdomen. Not knowing what to do, I screamed for my brother, who entered my room startled by my screaming.
"Something is wrong. I need to go the hospital!" I told him. He just stood there with wide eyes. "I can't drive yet. What should I do? Call an ambulance?"
"No, call Nana and Papa. She has a cellphone and we can get a hold of them even if they aren't home." I seemed to wimper and moan through out my speaking and the pain remained - pushing, throbbing. It didn't let up and I thought that I may die right here in front of my little brother.
He left the room to call our grandparents. I figured I should at least put on a bra and some suitable clothes to visit the ER. So, I learned very quickly trying to dress while hunched over in pain can prove to be quite difficult.
While Kyle called our grandparents, (our parents were unreachable when away from home because back in 2001, cellphones weren't as prevalent and my parents were those people that would rather give their college-going daughter and son (my other brother) a cellphone before they got their own) I got dressed and crawled back into my bed, trying not to be too hysterical because I didn't want to scare my brother any more than he already was.
When my Nana and Papa finally arrived, they helped me to their car and we were off to the ER. On the way, we came to a traffic stop - there was a parade! Of all days, really, a parade?! That didn't stop my Nana from getting out of the car, approaching the policeman that was holding back the traffic, and explaining to him that we had to get to the ER before her granddaughter's abdomen exploded! She returned to the car, out of breath, and said, "He's letting us through!"
"Oh Geez!" I thought to myself. They are going to halt the parade just so we can drive through it on our way to the ER. Had I not been in pain, I would have been mortified that the parade had to stop because of me and my assertive grandmother that ran from our car and back to speak with a policeman. I mean, everyone could see me in the backseat wincing and clenching my right side. Just to be safe, I slipped further down in my seat as my Papa weaved and squeaked his tires around and through the crowd that was just moments before watching the parade. And, yes, he actually drove through the parade!! How embarrassing!
We finally arrived at the hospital and waited for about twenty minutes before they called my name. Somehow my Nana was able to locate my parents and they arrived as I entered the triage room with a nurse that had a kind face. My mom joined me apologizing and near tears because she wasn't with me until now. "It's okay, Mom," I told her. My mom does not handle injury or pain well - especially when her children are the ones in pain or injured. She would usually refer us to Daddy if he were home, because she had a tendency to faint.
"So, what is wrong? What hurts?" the nurse asked me and held up a chart that had the numbers listed 1 through 10 with a drawing of a face with each number that was supposed to depict the pain one was feeling. "Please tell me the degree of your pain on this scale from 1 to 10."
I looked at the chart and said, well, I can't really remember what number I gave her because this was almost ten years ago and my memory isn't what it used to be. But, I'm pretty sure it was in the neighborhood of 8 or 9. At this point, my mom had a couple tears running down her face. "I didn't know it was that bad!" she said.
The nurse asked me a lot more questions about my menstrual cycle. I answered the questions as best I could, but my cycles were so irregular and almost non-existent, plus the pain in my side was tearing through my body. Annoyed, I informed her that the information about my cycle didn't matter because it was my appendix that was causing the pain. I was going to go into shock if they didn't get my appendix out - and fast! She didn't comment on my appendix.
The next thing I remember is lying in a hospital bed and a nurse putting an IV in my right arm, realizing there was air in the needle, pulling it out and nervously laughing, "I just realized there was air in the needle, so I will have to start again. I could have stopped your heart." (Okay, this is the point at which I most likely acquired my horrific, anxiety-laden phobia of needles. I will post about this phobia in an upcoming post as needles play a very important role in most fertility treatments. Boo!)
"What?!!" I thought to myself and looked over at my parents who were watching wide-eyed. "Please don't kill me!"
After that, I really don't remember a whole lot because I was on Demerol to soothe the pain, which it didn't really do. It just didn't allow me to care about the pain even though I could still feel it. I felt so sleepy I couldn't keep my eyes open for very long or speak more than a couple words at a time. I could, however, hear and understand every word that was uttered by anyone in the room. I lied there and listened to my parents talk about me in fear of the unknowing, cry because they couldn't help me. They talked about me as if I were dead and not being able to listen to it anymore, I rolled my head over to look at them, used all my strength to open my eyes and said, "I can hear everything you are saying. I am fine, just sleepy!" I remember how they startled and just stared at me - shocked that I was alive and speaking. If I weren't totally stoned, I would have laughed at them.
I remember the sting of the catheter they shoved up my urethra AND when they pulled it out. I remember the dull painful pressure from the ultrasound wand as they pushed it into and rolled it around on my abdomen. I remember the vials of blood they took from my arm and felt the eyes of lots of nurses, and a couple of doctors, as they looked at my private parts and felt around them and, yes, in them. And, I just lied there like a dead person, helpless and often trying to think about being somewhere else, trying desperately to ignore what was happening to me.
After several hours, a nurse entered the room and removed my IV. "It's time to wake up. The doctor is going to come in and talk to you and your parents."
I opened my eyes and nodded my head. Thank goodness! I was almost able to go home, I thought.
He walked in - a tall, black doctor with a wide, bright smile. "I'm Dr. Brown. Are you feeling better?"
Actually, I hadn't taken notice of my pain, but I was feeling better as the Demerol exited my system and the pain, too, had subsided. "Yes, I am feeling better. I don't have any pain."
"Good," he said. "Are you ready to talk about what happened?"
"Yes, I said, as I attempted to fix my eyes on him without them shutting - still a bit woozy from the Demerol.
My parents moved to the edge of their seats and Dr. Brown began. "The pain you were experiencing was due to the rupturing of two ovarian cysts that were on your right ovary. The fluid they released spread throughout the right side of your abdomen and caused discomfort. Some women have claimed this pain is worse than giving birth."
My only thought at this moment was - he was comparing it to child birth, yet called the pain "discomfort?" Obviously, he hadn't experienced either one - ovarian cysts rupturing or childbirth!
He continued, "Based on your irregular, often absent, menstrual cycle, I am going to recommend that you start taking this and continue the dosage until you are ready to have kids someday." He brought his hands out of his doctor's coat to reveal what looked like a red makeup compact. He handed it to me.
I opened it and inside, organized in a circle, were, 30 small round pills. "Birth control?" I asked. "But, I'm a virgin. I'm not sexually active."
"This will only help your body regulate the hormones necessary for a regular period each month."
"So, what's wrong with me and my hormones? My gynecologist told me I just didn't have enough body fat to have a regular period. (Yes, I was a 128 lb. string bean at this particular time in my life. Trust me, putting on a few pounds of body fat never helped me in having a regular period!)"
At this point, I can only remember him talking about PCOS (polycystic ovarian syndrome) and even though I didn't have the usual symptoms of the syndrome, PCOS most accurately described what has happening in my body.
Immediately, my next question was, "Will I be able to have babies?" This concern was very close to my heart, even though I had no marriage prospect in sight nor any plans of becoming a mom in the near future. But, I had known from the time I was a child that I wanted to be a mom and the thought of not being able to have a baby of my own was terrifying!
"If everything remains the same, I expect you should be able to have children, but you may encounter difficulty getting pregnant since your cycles are so irregular. I can't even confirm that you are even ovulating with your cycles. It may be just break through bleeding."
The conversation ended soon after that and he scheduled an appointment to see me in a month so he could check out my ovaries again to make sure everything was looking alright.
I was released from the hospital and my parents drove me home after making a quick stop at Braum's for a burger and chocolate milkshake to-go. The day ended much more peacefully than it had begun, but I would have never imagined that almost ten years later I would be happily married and unable to conceive.
That day will forever remain in my mind because it was the day that my irregular cycles went from "not-a worry" to an actual diagnosis of a syndrome that has proven throughout the years to cause infertility in its victims. Within that last couple years, the consequences of that diagnosis have become a stark reality in my life, threatening my dreams of carrying Chad's and my baby - my dreams of becoming a mommy.

Sunday, September 11, 2011

Just to get started . . .

I have sat down to begin this blog many times. And, with each month that passed, I hoped that I would be pregnant and the entire purpose of the blog would change from hoping, praying, and often begging God for a baby to a celebration and, hopefully, inspirational, success story of a fertility-challenged couple to an expectant couple. But, as you will soon read, my hopes for the latter have not yet been fulfilled and my procrastination in beginning this blog has only proved to help stock pile information and ideas for upcoming entries - which has to be a good thing, right? So, get ready for learning more details about my life than you ever wanted to know.
I will write more about my husband and our "love story" in upcoming entries, but to start you off with a bit of background information, I will serve you our life in a nutshell. Here it goes: Chad and I have been married for five years. We live in a small, red brick house that is older than my daddy. We have two cats: Baxter and Bella (which you will hear a lot about, too!) and a very large Golden Retriever named Thatcher. He is a gentle giant. Chad and I enjoy live music, traveling, trips to the zoo, good food, watching movies, and reading. Our separate interests composes a much longer list, so I will spare you for now. I am currently working a new part time job and watching a sweet 14 month old boy on days I am off from my job. Chad is in his third year of medical school, which often dictates our day-to-day schedule and social lives. (You will also read a lot about being a wife of a medical school student since it is a huge part of our lives right now.) Medical school definitely has its ups and downs, but Chad has done very well and I am very proud of him. Both of us can hardly wait, however, for his graduation in 2013! Hooray!
Now to get to the nitty-gritty of this blog . . . Chad and I decided to start trying for a baby toward the end of 2009. We knew conceiving may prove to be a challenge because of a diagnosis I received eight years earlier, which I will share in an upcoming post. Because I had not taken birth control since we married, and we never experienced a "spontaneous" pregnancy, we decided to see a specialist in January 2010. So, that's where our journey to meeting our baby really began in my mind.
This journey has proved to be the most difficult thing I have experienced in my life. At times, I have felt more lonely than I have ever felt before, but it has also opened me up to relationships with people that have experienced some type of infertility or pregnancy loss. Their stories and encouragement have been a lifeline when so often I couldn't see the light at the end of the tunnel. I have also read stories and blogs online that helped to inspire my blog.
Infertility has claimed many hearts on this planet - more than I ever imagined! And, I learned very early in this process that the person sitting in the cubicle next to you at work could very well be going through the same thing you are going through. (I happened to befriend this described person!) But, almost no one talks about their struggles and pains with infertility - for obvious reasons. So, I hope this blog serves to be an outlet, not only for my rantings and stories, but for those of you that have been where I am right now. I pray you find inspiration, hope, and a few giggles when reading this blog - whether you've struggled with infertility or not. All are welcome! The more people hear about infertility and learn about it, the more we, as a community, will know how to encourage, support, and listen to those struggling. I also pray with more awareness, the scientists and medical community will decide to devote some time and funding to finding a cure for some of the culprits that cause infertility. No one should have to struggle to conceive - it is, after all, one of the most primal functions of being a creature on this planet.
So, I will close this post with an explanation on the title of my blog. Believe me, I brainstormed and had an entire sheet of paper full of potential titles. But, with a little help from my friend, some editing from Chad, both paired with one of the lessons this journey has taught me, I decided on 'Enduring Hope: Our Journey to Meeting Our Baby.' 'Enduring Hope' means two different things to me at different times in this process of trying to conceive. 1.) Hope is enduring and keeps Chad and me going, pushing toward our dream of being parents. 2.) On the flip side, sometimes it feels as though we are literally suffering under and enduring the very same hope. Every time our dreams are shaken with a negative pregnancy test, it is our hope that seems to bring the most pain. But, hope has remained and sustained us on this journey and will, too, accompany us when one day we greet our baby. Our hopes, then, will be for our little one's joy, health, and spirit in life.
Many people have spoken of hope, but perhaps, one of my favorite references is the poem by Emily Dickinson. I will leave you with her poem and pray that you, too, will find it perched in your heart, sustaining your dreams and helping you through each day - as it has done for me and Chad through our journey to meeting our baby.

HOPE

HOPE is the thing with feathers
That perches in the soul
And sings the tune without the words,
And never stops at all,

And sweetest in the gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm.

I've heard it in the chillest land,
And on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.